This week we’re delighted to be joined by Vera Twomey, mother of Ava (who suffers from Dravet Syndrome, a rare form of epilepsy), medical cannabis advocate, activist, and author of ‘For Ava…’.
From the perspective of a mother and caregiver, Vera shares the difficulties and frustrations faced accessing cannabis in Ireland, the importance of access to medical cannabis for children, and the extreme lengths she went to to find medicine for her child.
→ View full show notes, summary, and access resources here: https://www.canverse.global/shownotes/e103
‘When we started on this journey we were so alone, we didn’t know where to turn’ 30:40
‘I never intended to be known for issues surrounding cannabis, but when there are children involved… morally it is the right thing to do to share that with other parents to give them the opportunity to maybe find some improvement for their child’s life’ 31:17
Join Vera on Twitter: https://twitter.com/veras1
Buy Vera’s Book: https://www.amazon.co.uk/Ava-incurable-reluctant-activist-campaign/dp/1781176833
Dravet Syndrome UK:https://www.dravet.org.uk/